Today Benjamin made it out of the room!!
He walked about 10 steps into the hallway. In the picture if you look just behind him you can see his room is set back from the hallway about 5 feet.
This is the first time he’s made it out of that space.
He also had his first biopsy of the small intestine and there were no signs of rejection!! Happy Day.
This was excellent news! We know this doesn’t mean he wont ever have some rejection it just means there isn't any right now. I’m taking that as a win!
The bad news is his left arm has been very swollen. They finally did an ultrasound on his neck and arm today and discovered that he has a blood clot. They put him on heparin to treat the blood clot. Heparin is a blood thinner, so they are hopping that it doesn’t affect the bleeding he had in his stomach that is currently stopped.
It’s a Roller Coaster ride we’re on, but it’s one we waited in line for, for a long time, so I remind myself its a blessing just to be on it.
Ben’s quote of the day: “I’m all sorts of tangled up.”
He’s got a lot of cords and tubes and sometimes it all becomes a tangled mess.
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