He was thrilled to be leaving, he felt like he could walk to the car. It is actually quite a distance. The Cleveland Clinic his huge!! So he got to ride in style.
Now we begin the next part of this Transplant Adventure with continued recovery at home.
He will have to go in to clinic every Monday and Thursday for labs and biopsies. He will be taking approximately 30 pills every day as well as monitoring blood pressure and weight. He has to track everything he eats and drinks. He will be on one bag of vitamin IV a day for a few days until they see how his vitamin level absorption does at home. This in itself is a huge win for Ben, a lot of patients are still on TPN at this point. The first 3 months are the trickiest. So he will be monitored very closely.
We are forever grateful for the Cleveland Clinic, our doctors, nurses, techs and all other staff who helped with his care! We are also forever grateful for all the prayers, support and love given to us by friends, family and even strangers! We are grateful for the selfless gift a family made to donate their loved ones organs, they will be remembered and thought of by us forever. We are extremely grateful for modern medicine and the transplant and donor program. We know without a doubt Heavenly Father brought us to Ohio and guided us to these doctors so that Ben could have a chance at a full and productive life. We know the adventure is not over, it’s just a new phase that will have ups and downs. We also know Heavenly Father will be with us 100% of the way.
Now that Ben is home I will not be doing updates every day but I will do updates once a week or so. There are still many hills to climb for Ben in this transplant journey and we have faith that he will push hard until he reaches his loftiest goal.
Ben’s quote of the day: “I’m ready to sleep in my own bed.”
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