Thursday, February 20, 2020

Post Transplant Day 16

 Today was a great day!!  Ben got his 2nd JP drain removed, only two more to go.  Mom didn’t get to be at the hospital today because I woke up with a little sore throat. :-(
Thank goodness Dad is here!  Ben received a unit of blood today because his hemoglobin was in the 7 range and it needs to be above 8.

We had more education from the post transplant team preparing us for care at home.  Otherwise he walked a lot and chatted with anyone he happened to pass.

Ben’s quote of the day: “Can I go home today?”
The doctor turned and looked at him and said “Are you joking with me?

Pictured below you can see where Bens central lines were removed from and where his new one is.


This is Anita, Ben’s transplant coordinator!  She is one of our favorite people!!  She has been with us every minute of this adventure since we first found out we were coming to the Cleveland Clinic.  She arranged about everything under the sun. She is who we called when there was any concern or questions for the last 18 months.  Plus she is the BEST support because she can answer almost any question we have.  And if she can’t she knows who can.  She also knows all the good things to see and do around Cleveland, so she offered us a wealth of ideas for keeping busy. We will miss seeing her every month at our visits.  Once you have transplant you get a new coordinator.  A post transplant coordinator.  I’m sure we will grow to love them too. ;-)

Ben walking his girl to the elevator after her evening visit. 

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