The good days are adding up!
We recieved the results of Benjamin’s CT scan from yesterday, one of the clots that was in one of the donor veins is completely gone and the other has diminished. This is really great because it shows that his body is slowly dissolving them.
We had a funny/not so funny experience with Ben’s consumption of saltine crackers!
Ben is on a 10 gram of fat diet restriction per day. When they come and take his requests for his meals they are very careful to track each gram of fat. This makes his diet a little difficult.
They told him besides the meals he gets delivered to him, he can have the nurses give him juice, popcycles and Saltines. This is extra good news because Ben has always loved Saltines.
Well his JP drains started to have too much Chyl in them. It had just started to increase in the last few days.
The doctors could not figure it out, he shouldn’t be leaking that much Chyl if his fat intake was low.
Well Lincoln and I were at the store buying groceries in preparation for Ben coming home. I went to pick up some Saltines and decided to check the fat content. 1.5 grams of fat in 5 crackers.
Hmmm... I started wondering how many crackers he had eaten.
So I called him and asked.
He said the team had told him to try and up the volume in his diet. He isn’t liking the hospital food so he added volume by eating crackers throughout the day. He said probably 60 crackers yesterday!
That is 18 GRAMS OF FAT in crackers alone!
When the team came around on rounds we told them we think we found the culprit of the increase in Chyl.
He proceeded to tell them about his cracker consumption. He’s a hungry boy and Saltines were tasting good to him and the nurses kept giving them to him when he asked.
The nutritionist was in shock!! He said they never restrict patients on crackers, apparently they’ve never had a patient who liked crackers enough to eat that many. :-)
Needless to say, he will not be eating crackers for a while.
The good news... Chyl mystery solved!
Ben and his girl ventured off the transplant floor and up to the roof overlook for a few hours today. The view up there is beautiful. He enjoyed some sunshine and a change of scenery.
Things are continuing to improve and he’s doing amazingly well. Here’s hoping for an early week release date!
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