Happy 26th Birthday Benjamin!!
Today was another day of ups and downs. We had bleeding in the stomach again. One of his abdomen drains (JP drain) needed an extra stitch or two because it was leaking. This caused an increase of pain. It was a very hard day of trying to manage pain. Even through all the pain he still got up to walk twice today. He is so tough!
We brought him in a birthday balloon and then some friends from the singles ward brought him a bucket of fun things to do to help pass the time and some more balloons. They couldn’t visit him, but it was fun for him to get a few big cards with a lot of birthday wishes for him to read. One card from the Cleveland YSA and one from the Kirtland Ward. They also gave him a big fuzzy blue blanket which he loves!
The nutrition team sent up his bag of TPN with an Orange Fanta picture taped to it. They had heard he was craving Orange soda so this was a fun surprise. Not quite the real thing but funny nonetheless! He also had to have a unit of blood today because of the bleeding from his stomach and a when the unit came up from the blood bank they had attached a birthday card as well.
The cold wet washcloth on his head has been helpful and soothing when he is suffering with a lot of pain.
For mommy today took a toll. While driving home I found myself in tears.. its hard to watch one of your kids suffer with pain that you cannot take away. It’s times like these I’m grateful for my Heavenly Father and my Savior. I am not alone... they are with me and all will be well.
Ben’s quote of the day: “Can I have a swabee” He’s referring to the green mouth swabs you wet his lips with. He loves these, especially since he isn’t allowed an anything by mouth at this time. He asks for them frequently.
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