Wednesday, August 26, 2020

Post Transplant Update Week 30



Today marks a big day in Ben’s transplant journey. 
Part of the transplant surgery included Ben getting a chimney ileostomy.
The main purpose of this is for access to his new small intestine.
I’ve mentioned that he has to have regular scopes to detect rejection of the small intestine.
In order to easily do those scopes they use the ostomy.
Most patients have them for 3-6 months and then they reverse them.

Today was the surgery to reverse Ben’s ostomy. 
It is the final step for him before we can return to Utah to live.


They give you this handy pager so you know exactly when the surgery begins.
The surgery took 1 hour and 45 minutes.
Everything went according to plan.
He will remain in the hospital for 2-3 days.
Ben is finally free of ALL devises.
No tubes nothing for the first time in 5 years.
He is excited.
Unfortunately they did have to give him a big dose of steroids prior to the surgery so he will have some additional puffiness for a few weeks.
He is feeling good and moving around already.

We have to stay in Ohio for 1 more month to make sure everything continues to do well.
Then it’s home to Utah!!



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