Ben reached 6 months post transplant today!
He’s doing great.
The picture above was taken 2 years ago just a few weeks before we left Utah for Ohio.
The ones below were taken just a few days ago.
You can really see the difference between the pictures.
Ben continues with recovery and the tapering of his steroid dose.
We just completed his first visit home post transplant.
He still suffers from intermittent headaches and steroid swelling
But he enjoys eating foods he’s gone without for years.
Ben had an appointment with his GI in Utah to arrange for him to begin seeing Ben as his doctor when we get back to Utah. He will treat Ben under the direction of the Transplant team in Ohio. All lab results will continue to go to the Team and they will continue to decide Bens care and the Doctor in Utah will facilitate it. Bens doctor in Utah is the one who referred us to the Cleveland Clinic to begin with. He has been following along with Bens treatment here in Ohio via a Doctor Share program. He is aware of everything and looks forward to working with the team which will allow Ben to move home to Utah.
It has been decided that Ben will have surgery on August 26th to reverse or take down his ileostomy.
This is the last step that needs to be taken before he can go home.
Provided all goes well, he heals well and there are no complications,
Ben and I can move home to Utah one month after the Surgery.
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