Today Ben had his first CMP or (Comprehensive Metabolic Panel) come back all within normal ranges for the first time in over 5 years!! We couldn’t believe it! He continues to improve weekly. He’s still on high steroids to prevent rejection, which causes body swelling. They are slowly tapering him down, but as I’ve said before this takes months. He suffers from periodic headaches and hand tremors but otherwise is doing great!
We finally purchased him a car in preparation for him being here in Ohio on his own for a while. The bad news... they aren’t going to let him be in Ohio on his own. We found out at our appointment on June 17th that I have to stay here until Benjamin gets to go home to Utah. This was very very difficult for me. We were always under the impression that I would be able to go home once he was stable enough to live alone. My heart is torn between Utah and my family who needs me there, and Benjamin who needs me here. It was a rough time for me. We are both going home for a visit in July. It will be a trial run for Benjamin. If all goes well when we get back to Ohio he’ll have a small surgery and if he continues to do well with no signs of rejection or complications from the surgery, we will both get to go home to Utah to live in late September.
All of Bens appointments with the Team have been virtual. It’s crazy how Covid has effected everything so much. It’s also amazing the things we can accomplish thanks to technology.
I sometimes have to remind myself that I am not in charge. I’ve said it before but its worth repeating Heavenly Father is in charge. In just a few weeks we will hit the two year mark of our time here in Ohio. We have seen miracles and blessings in abundance and we couldn’t be more grateful.
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