He’s come along way in the last 4 months.
Ben continues to improve weekly, he is able to eat almost anything, his new organs are digesting, processing and he is absorbing nutrients.
Pictured below he’s enjoying is first apple fry pie.
He was able to have his central IV line pulled last week, this is the first time in over 3 years he is free of tubes!!! Ben hasn’t had any more signs of rejection.
He continues to be on that high dose of steroids since rejection and they are just starting the tapering down process, which is very slow. The worst thing for him is that the high steroids cause roundness of the face, shoulders and abdomen. This should decrease over time as the steroid dose decreases.
His energy is slowly improving. We would say all the negative symptoms Ben is currently having are side effects from medicines.
He is finally able to get out and enjoy a bit of nature again as long as we avoid crowded places and too many people. Dad just spent a few weeks visiting and its always good for them to have some father son time.
The team told us if he continues on this track he could possible go home to Utah in 3 months!!
We truly have seen miracles and blessings in abundance.
Heavenly Father is in charge, of this we are sure!
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